As a parent of a child with special needs. I was expecting the stares, the avoidances and the reassuring.
Today, I was told “I would not be carrying him”. “He can walk.” “Oh my back.” They exclaimed.
Sure, the person meant well, but is it something that should be said? Sure, I explained my son has special needs (I kind of have to). But I could tell the person was still kind of eh.
I carry my son at the age of 4 to keep him safe. Sure, it hurts my back eventually. But my number one priority is to keep him safe. If I put him down he will run away faster then I can catch him.
If I try to make him hold my hand he will force himself away or drop to his legs to get away.
My son is a runner. So I carry him to keep him safe. Sure, at times he rides in a cart or stroller. But in this situation it was easier to just carry him.
One of the hardest things for me being a autism mom, is when my child is sick.
My child has a immune deficiency that is unknown yet. So he is sick quite often.
He is nonverbal so I am constantly questioning myself. Is he ok ? Why is he covering his ears more? Yes, he covers them some already, but it’s a lot more today. Why is he doing that? Do his ears hurt? Does his belly hurt? AM I CRAZY and over thinking ? The list goes on.
Lucky for us, we have a amazing pediatrician that understands my concerns and is great with him.
Typically, it is a fight with him going to the doctors. But she is awesome with him.
My advice for everyone with loved ones reading this, is to trust your instincts. If you feel something is wrong, go with it. Because I bet your instincts are usually right.
Buddy is now 26, so I sometimes wonder what he would be like if he were a typical 26yr old.
I know he would be funny.
He would love pizza AND broccoli.
He would not like wrinkled clothes or striped shirts.
He would be slightly self impressed. Not passing a mirror without taking a gander at himself.
He would be very laid back and non-confrontational.
I imagine that he would work with his hands…fixing airplanes or cars (like his uncle and grandfather) most likely.
He would love dogs and cats, and would have 2 dogs, one named Scooby and one Clifford.
He would drive a 4×4 but have desire to also own a shiny sports car and a John Deere.
He would watch old sitcoms and documentaries. And have a great knowledge of music and a vast library of CDs.
He wouldn’t be a leader or a follower…but a “by your side all the way” friend.
He would be a sweet, loving, affectionate person.
How do I know? Because these are all traits and likes that he already has.